Sunday, June 13, 2010

Some helpful books for Behcet's patients

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There are several books available through that may be helpful for you as a Behcet's patient. (Not counting my own books, of course  ;-)  which are available at my Behcet's online bookstore.)

For full disclosure, yes I'd get a small referral fee for any book that's ordered through this blog post -- but that's not the reason I'm doing it. The bottom line is it's just too expensive for me to keep copies of all of these books stocked in my own inventory. So these book recommendations will let you know what's out there, and what I feel will help the most patients. If you'd rather not spend the money, your local library or med school/hospital library may even have some of them available instead.

Be well,

Coping with Prednisone: Revised and Updated (2007) 
It may work miracles, but how do you handle the side effects?

How to Get SSI and Social Security Disability:
An Insider's Step by Step Guide

Disability Workbook for Social Security Applicants:
 7th Edition (2008)

NEW:  Behcet's Syndrome
By Yusuf and Hasan Yazici, top Behcet's researchers & clinicians
400 pages

by Oliver Sacks

The best book about migraine headaches that I've ever read.

Peripheral Neuropathy: When the Numbness, Weakness, and Pain Won't Stop
From the American Academy of Neurology (2006)

The Complete Idiot's Guide to the Anti-Inflammation Diet (2006)
No, I don't know if this diet works, but it's been kicking around for a bit and some people swear by it.

The Promise of Low Dose Naltrexone Therapy:
Potential Benefits in Cancer, Autoimmune, Neurological and Infectious Disorders (2008)
This is an expensive book, and I'm not suggesting that BDers should jump on the LDN bandwagon. But if you're interested in the subject and want some background, this book might help you. Your local/regional library may have a copy if you don't want to buy it yourself.

A Guide to Ocular Inflammatory Disease [including uveitis]
By C. Stephen Foster, M.D., F.A.C.S.
This booklet can be read online at:
It's also possible to order a free hard-copy version here:

For anyone wanting one of the USB medical record "dog tag" necklaces that I had for sale at the ABDA conference in April, you can get more information by clicking on the "American Medical ID" logo at the top right of this blog post, then type "USB eMedTAG" in the search box.

And finally, here are some Behcet's books/products that you SHOULDN'T buy:

21st Century Ultimate Medical Guide to Behcet's Syndrome - Authoritative Clinical Information for Physicians and Patients (Two CD-ROM Set)
by PM Medical Health News (CD-ROM - Mar. 14, 2009)   $25. See my review at the link for an idea of why I don't recommend buying this CD set.

2009 Empowered Patient's Complete Reference to Behcet's Syndrome - Diagnosis, Treatment Options, Prognosis (Two CD-ROM Set) by PM Medical Health News (CD-ROM - Mar. 14, 2009) $25. Again, see my online review at the link.

Behçet Disease Medical Guide by Qontro Medical Guides (Paperback - July 9, 2008).  $9.99. The price is great, but only 9 of the total 28 pages have any information on Behcet's -- and what's there is printed in large type. There are 4 pages of references, and 10 pages explaining how the GNU Free Documentation License works (allowing you to share the contents of the booklet with anyone you'd like).

Behçet's disease by Frederic P. Miller, Agnes F. Vandome, and John McBrewster (Alphascript Publishing, Paperback - Mar. 5, 2010). Alphascript is a publishing mill, cranking out computer-generated content... with a twist. This time, all of the content is taken directly from Wikipedia, of all places -- not known as a great source of accurate info. The book is already listed as "out of print," even though it just came out in March, so maybe amazon has gotten wise to these scams. If you want to see a definition of "irony," take a look at Wikipedia's entry on Alphascript Publishing  ;-)

The Official Patient's Sourcebook on Behcet's Disease: A Revised and Updated Directory for the Internet Age  (Icon Health Publications)  $29.95. Another publishing mill, with over 1,900 medical topics in print. They used a template to create this book, substituting "Behcet's" in all the appropriate places.