Wednesday, September 30, 2009

The online Behcet's Treatment Survey ends in two days (October 1st)

If you haven't filled out the online Behcet's Treatment Survey yet, please take a few minutes to do it, at:

The info from this survey will help Behcet's patients all over the world, as they try to make decisions about the best possible treatment(s) for their own situations. Once I have a chance to analyze all of the responses (which will take a while, since there are already 205 completed surveys), I'll post a general summary of the info here, as well as at the different BD support sites and organizations.

All of the statistics and comments will eventually be compiled into a book about treatments for Behcet's. It will include info on possible side effects of the different meds, an extra chapter on meds during pregnancy/nursing, and (hopefully) a chapter on pain meds, written by a pain specialist. Phew.

BTW, I'm hoping to set up a shorter, second survey in October that will only ask about topical treatments for BD skin problems (oral/genital ulcers/rashes, etc). This info will also be included in the book.

If you're one of the people who has asked questions about the survey (or other BD info) in the "comments" section, I haven't had time to read through all of the comments yet -- I'll get back to you, but it may take a while.

Thanks so much to everyone who has participated so far!
All the best,