Sunday, March 15, 2015

Nominations now open for 2015 Global Genes RARE disease advocacy awards

From the Global Genes website:


It’s that time of year again, when the rare disease community looks amongst themselves to identify and nominate agents of change, agents of innovation, and individuals who are working tirelessly on behalf of those affected by one of the 7,000 rare diseases impacting over 350 million people worldwide. Rare disease activists come from many different disciplines and are usually not recognized for the good work that they are doing. This is our opportunity as a community to come together to celebrate and honor those who are setting higher standards, making significant changes and fearlessly attacking challenges differently. Join Global Genes in recognizing these incredible individuals by nominating your Champion of Hope today.

All nominees will receive a special recognition gift, and those who win will be asked to join us in Southern California in September at the Tribute To Champions of Hope Gala. Winners must be available Friday, September 25 and Saturday, September 26.

**Award Recipients are not based on number of submissions. All nominations will be reviewed and winner decided by the Global Genes Award Committee**   

The six award categories are: 
  • RARE Champion in Medical Care & Treatment
  • RARE Champion in Science
  • RARE Champion in Advocacy​
  • RARE Champion in Teen Advocacy​ 
  • RARE Champion, Collaborations in Advocacy
  • RARE Champion, Collaborations in Science & Technology 
Go here to nominate a person or group:

Receiving one of these awards is a true honor for patient/disease advocates. I have Behcet's-related suggestions for some of the categories on the list -- let's collaborate and get Behcet's the global recognition it deserves! Feel free to contact me at jzeis at charter dot net.